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Almost pure blood and blood clots in urine

Kidney & Bladder | Last Active: Mar 13, 2023 | Replies (58)

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@so1frustrated

Thank you for following me in this. Sadly after a week of having normal looking urine and thinking all was fine after taking 2 courses of Cephalexin 500 mg 2x/day, the blood appeared again yesterday morning, the morning of seeing the urologist for follow-up. He is now scheduling me for a CT Urogram as 1st CT was done without contrast. My urine has been showing (in progression): blood of 3+ consistently; protein of 2+, then trace, now 1+; and leukocyte esterase of trace/trace/now 1+. All else is normal, and the blood panel my NP did shows normal kidney and liver function. He (Urologist) has also scheduled me for another cystoscopy in case he missed something the first time around. His focus is on cancer of the bladder because of previous history, although nothing has shown up yet. He keeps saying that he does not think it is infection because nothing is showing up on the culture. Please keep me in prayer if you are a praying person, and thank you for being there with advice and encouragement. Oh, he wanted to do another FISH test as the last urine cytology from my NP showed atypical cells again but I had to decline because of cost.

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Replies to "Thank you for following me in this. Sadly after a week of having normal looking urine..."

@so1frustrated, thank goodness your healthcare team is staying on top of this and that you are being closely watched and tested to figure things out. I will certainly keep you in my thoughts. I also want to let you know that you are not alone. Whatever the diagnosis, members will walk the journey with you and have relevant experiences to share. The community is a good place to also talk about your fears, concerns, and joys as you navigate the waiting game - in some respects, the hardest part. Do you have to wait long for the cystoscopy?