Hi Ginger, quick update. Had the full course of Bactrim, and was helping at first, but during treatment symptoms came back, off and on but not as bad. Today is follow-up with NP, and finished Bactrim (10-day course) last dose this past Monday morning. This morning when went to urinate after out of bed urinated heavy blood and blood clot again. Prior to this mostly honey colored, foamy urine, but occasionally almost normal looking urine so was hopeful . I am sure she will do urinalysis and culture again and praying that something shows up this time besides just blood, white cells and protein. Will ask for Keflex (generic) to try, asking for longest safe dosage. There is no sign of kidney or liver disease on CMP's; BUN, etc. within normal range. Hoping she is will to try one last round. Will definitely be following up with neurologist at end of March, but maybe sooner if NP wants me to and I can get in….really hard to schedule with them.