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Almost pure blood and blood clots in urine
Ginger, if I may ask, how did you find out you had kidney disease, and how did they diagnose it (was it diagnosed through a urologist)?
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@so1frustrated The formal diagnosis of my ultra-rare disease came in March 2015, after the first kidney biopsy [there have been more since then]. Prior to that, the doctor had noticed in my bloodwork that the kidney function indicator, seen on lab-work as eGFR, was not normal, and trending downwards over time. There are many causes of chronic kidney disease. Hereditary issues, or untreated high blood pressure, diabetes, etc. Here is an article from Mayo Clinic about CKD https://www.mayoclinic.org/diseases-conditions/chronic-kidney-disease/symptoms-causes/syc-20354521.
A nephrologist is a doctor who specializes in the kidneys. A urologist specializes in the urinary tract, which includes kidneys, bladder, ureters.
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