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← Return to Focal Active Colitis? Help
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@zcheng32 - I think I had 2 colonoscopies during the 4-5 years I was seen there. Like you, I had a more uncomfortable colonoscopy before with my local GI. I didn’t have any problems at Mayo. There were also CT scans and MRIs with contrast.
The immunosuppressive I took was Imuran. It was my choice to go through with it- I could not live like I had done for years. I was aware of side effects- suppressed immune system opens the door for infections. I had my share. I took it for a few moths and stopped when I was too run down from infections.
It did work and I have not had any recurrence. I am aware that it could happen.
Don’t be afraid of being evaluated at Mayo. They are very good at discussing things thoroughly. Remember- nobody will force you to have a test that you are not comfortable with.
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So if I understood it correctly--you first had collagenous colitis that was only partially treated before you came to Mayo? And after you came to Mayo they found focal active colitis that was not specifically showing as UC, Crohn's or microscopic colitis? And you started Imuran for this non-specific inflammation? May I ask which doctor were you working with?
I have an appointment with Dr. Russell Heigh from Arizona on Friday and I'm really nervous.My local doctor kept saying I don't have IBD due to the inflammation being non specific and refused to do anything. All he could offer was pain meds for IBS which does not help me. I really hope Mayo doctors could have more things to offer and "treat" me. I can't live like this for the rest of my life. Although the SCD diet has been helping with reducing the diarrhea but after being on it for 4 months I don't think that alone is able to bring down the inflammation.