Jennifer, this MAC disease is all new to me. The weird thing is, I have been researching my symptoms for over one year, almost daily. The search terms would change so I could get different results. Yet, in all this time, MAC never showed up...It is like the Great Oz behind the internet controller curtain decided to let the information out at his timing and will. How could it have not shown up in all that time?
Jennifer, all i know about this MAC is what i have read, and so far the people that have it claim to be on 3 different antibiotics at once, for many months. You need to ask your doctor why you are only on one. Also, it isn't good to be on steroids long-term, is it? Have you had sputum tests done to see which bacteria you have so the correct antibiotic is given, or was that determined by the bronchoscopy only? I have been on many different antibiotics going on one year, so I can certainly relate to your frustration. As for the Thoracic Surgeon, (I looked it up!) what does your spine have to do with the lung condition? I wish you the best tomorrow. May God lead you in the correct direction, and that you feel better.