Thanks fir the positive quote I’m actually sitting here crying I just can’t wait to see one of my drs I’m not one to complain at all but I just feel there has to be something eles besides the Arikayce I’m on to help me I’m sure I will know soon. Well back in December 2019 I had a bad cold just thought it was a usual sinus infection thing going on well my regular md had given me a z pack well within about 5 days I was wheezing when I made another appt with her she sent me for a chest x ray she said I have pneumonia I never had that ever. So she gave me leviquin and predisone I didn’t feel myself after that medication so she gave me a higher dose prednisone she then sent me for another X-ray and said she still sees fuzziness in my lung Rt do I was told go see a pulmonologist so I did he said let’s put you on a stronger dose of the leviquin antibiotic and predisone which I was actually starting to feel myself however he sent me for a ct scan month later which showed a nodule he said kept me in predisone and did another ct scan month later says it actually grew the nodule then said go to see the thoracic surgeon he referred me to he went over all my scans and said take it out let’s do surgery abs do this soon because I’m moving to another state n.j. So I said let me go for a second opinion and I did at Sloan the dr I saw did a bronchoscopy this past aug and he said I have MAC/MAI that’s when I found another pulmonologist here where I live and he said you need to be on Arikayce 12/18 months I started in December that we just passed 2 months ago but I’m so congested from it coughing lost voice I’m going to call tomorrow I am so so upset today I feel so alone and sad thanks for listening again

Jump to this post