@johnbishop - I had my appointment with the vascular specialist. Sort of. It was highly disappointing. My Dr referred me to this specific dr because he is good at thinking outside the box, but when I got there, it was clear that they only planned to see me as a follow up to my blood clot in Dec, (which I have already done with a different dr) and I actually didn’t see the specialist because he was in surgery, so I saw his PA instead. The PA was good about listening to everything and wrote down info to pass on to the dr, but in the end, he was just as stumped as every other person I have seen, and I have no hope in this actually leading to any answers. The PA says it doesn’t sound vascular to him.