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Thankyou for your great reply @avmcbellar. I can relate to you so well since I, too, have an AVM. Mine is on the brainstem, (yikes!) so I was once told I am like a walking time bomb. That was 25 years ago. Still rockin' ! You've had the surgery, so that's good. Mine is inoperable, so that's not so good. Lol. I used to obsess about it, but now, it is what it is!
Keep up the great work!
Replies to "Thankyou for your great reply @avmcbellar. I can relate to you so well since I, too,..."
@artist01
“it is what it is!”
I know what you mean. When I developed Epilepsy at 15 and went into Convulsive Status Epilepticus I was put in an induced coma for 8 months. When I came out of it I had no memories of my life. I had to relearn everything and I do mean EVERYTHING.
When I got home I started having seizures every day sometimes 12 a day. I had a breakdown. I told the psychiatrist “you’re crazier than I am” and walked out and never went back. I decided then, this is what my life is going to be, and for the next 44 years for the most part that's the way it was. Neither I nor the doctors could change it. “It is what it is.” You have no choice but to accept it if you want any joy out of life. Many Epilepsy patients suffer from depression but I wasn't going to be depressed. Besides depression, anxiety & stress can increase seizures. Mine were bad enough.
I think your a courageous lady Laurie and an inspiration for us all. Thank you for all the encouragement you have given us.
Guess I went a bit off track here. Sorry about that.
Take care,
Jake
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Ooh, yikes is right @artist01. The brainstem is a difficult location. You are very lucky. I am assuming there was no rupture. Doesn’t the brainstem involve involuntary control or movements of your body? For new assessments of your AVM you must have to undergo tests often. Do you go through cerebral angiograms? It is difficult either way, ruptured or not ruptured. My friend in Pennsylvania ended up with a concussion due to a fall. During her hospitalization it was discovered she had a cerebral AVM and a cerebral tumor. The doctors decided it was more important to surgically remove the tumor but keep an eye on the AVM because it was inoperable due to its risky location. She has to go through tests every six months. She is doing OK. I spoke to her last week and find out she caught the coronavirus back in November. Her sense of taste and smell has not returned yet. Interestingly her eyesight digressed. She had diplopia as a result of her fall and was doing well with her eye exercises until covid-19 hit her. She had to revert to an older pair of eye glasses with a prism to be able to see again. It goes to show we deal with whatever comes our way and that takes a lot of strength. I applaud you for all your efforts. I can truly appreciate how difficult it can become. Thanks @artist01. You too, keep up with the great work!