Hi Laurie @artist01 thank you! You are awesome, a great model for coming a long way with your health! Congratulations! It is wonderful to hear you have become more independent due to your perseverance with your medical beliefs. Keep on rockin!
It is amazing what our brain will allow us to do as long as we have the desire. I agree I don’t have much faith in the medical world. I didn’t believe much of what they were saying before my AVM but with this experience the medical industry over all has been a let down. It clinched it for me to try to help myself because as you said I felt I was written off. I didn’t want to continue from doctor to doctor for answers in fear of becoming a guinea pig. I can’t believe I reported my symptoms to so many physicians and not one stopped to ask any questions to help with my symptoms not even my recent PCP. Yes, I continue with my respect but only know they are a resource. My PCP office also gave me wrong advice. I guess if I had said anything their reasoning would be they are not specialists and to go to a neurologist. Well, all I asked was basic questions for advice. I have learned that doctors have to practice using a guideline set for them( for reimbursement ). I’m afraid this will cause many to NOT think outside the box. It is a shame because with set guidelines I believe it makes it easier and more accurate for machines to make a medical analysis and treatment than a person.

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