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New to Neuropathy 2 months.

Neuropathy | Last Active: Feb 1, 2022 | Replies (69)

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@jakedduck1

@avmcbellar
Medication side effects rarely affect me. The main problem I have is my balance. I never completely recovered my balance after my first coma. Tiredness, which has improved 90% except with dosage increases which is only temporary.
I never tried the Ketogenic diet. Getting cereal in the morning is a major accompaniment. I could never do the Keto diet. But I have significantly improved my diet.
None of the medications I took for 44 years seemed to helped my seizures, although the doctors felt it helped decrease my Status Epilepticus episodes, who knows what it would’ve been like had I never taken the meds. I didn’t believe they helped the Status then and I don’t really believe it now but who knows.
Take care,
Jake

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Replies to "@avmcbellar Medication side effects rarely affect me. The main problem I have is my balance. I..."

Jake, I also came out of a coma. I believe the brain continues to learn. At first I was in a wheel chair. Walking was impossible with my imbalance. I kept doing exercises and slowly progressed to where now I can walk on even surfaces without any device. For the grass and gravel outdoors I use a quad cane. Have you used physical therapy? It was a great help to me. I tried both home health for physical therapy only and then out patient services. The latter provided more exercises with the equipment available. At each session I began with their stationary bicycle for 10 minutes. I did a weekly session through PT outpatient to continue what I learned at home(otherwise PT was too expensive under Medicare- 80% coverage). At home I use a mini cycle machine everyday. I provide my own chair to cycle with the machine. I believe it is important to strengthen the core and limb muscles to prevent any falls. In the last few weeks diet and routine exercises have made a significant improvement for me. I will continue to increase my exercise duration. The brain can’t learn if it is not challenged. It is never too late. Toni