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Who else has Autonomic Neuropathy?

Neuropathy | Last Active: Jan 25, 2023 | Replies (105)
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@runnergirl

Hi All,
Thirteen years of symptoms and ten neurologist later I finally received a diagnosis of autoimmune autonomic neuropathy. Does anyone else out there have this same diagnosis?

I received one round of Rituxan infusions with the goal of "resetting" my immune system. I felt a little better but the symptoms returned. Because I have no B cells they don't want to give me another infusion. They are talking about a low dose of T cell modulators, such as Imuran or CellCept. Anyone have experience with either of those drugs? I can only think of the worst scenarios, but maybe low dose would be successful without too many side effects?

Thanks for any input!

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Replies to "Hi All, Thirteen years of symptoms and ten neurologist later I finally received a diagnosis of..."
dwlowrance | @dwlowrance | Mar 20, 2021

Thanks for the posting. Your diligence over the years paid off. Congratulations. I work on immune system health daily with a Mediteranean diet and lots on Vitamin E, garlic and olive oil. I hope you find a solution with prescriptions that works for you. Have a great day.

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runnergirl | @runnergirl | Mar 20, 2021

@dwlowrance thank you for your input. Cheers to you.

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Erika | @erikas | Mar 20, 2021

@runnergirl 13 years is a long time. Is autoimmune autonomic neuropathy a more generic diagnosis with less targeted treatments?

You will notice that I moved your question to a previous discussion related to this topic.

You'll notice that members like @avmcbellar @juanito have discussed autoimmune autonomic neuropathy here and may be able to offer information, suggestions, or support.

You may wish to scroll through previous posts and connect with members like @tigreyes2004 @bethunger @kelsey1234 @kenbahler2004 @sunnyflower @ncameron @fiesty76 that are active in the neuropathy group.
- Member Neuropathy Journey Stories: What's Yours? https://connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours/

May I ask what the difference is between Rituxan and CellCept?

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