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MAC & Bronchiectasis | Last Active: Feb 14, 2021 | Replies (66)

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@ginak

@goddard MAC (mycobacterium avium complex) is an NTM (non-tuberculosis mycobacterium). There are over 170 different types of mycobacterium; tuberculosis is one and, believe it or not, leprosy is also one. The different types vary in contagion and their effect on us. Bronchiectasis is damage to the bronchial tubes. It can be idiopathic, (unknown cause), or caused by many things; such as GERD (gastric esophageal reflux disease), silent aspiration of gastric acid, constant bronchitis, pneumonia, inhaling something damaging, or you can be born with it. If you have bronchiectasis, as many of us on this forum do, it makes you susceptible to getting MAC and/or getting sick from it with varying symptoms; constant cough, fever, weight loss, fatigue, night sweats. When the infection is active, it also causes additional lung damage such as cavities in the lungs. It may also contribute to getting lung nodules. Lung nodules can also caused by any type of inflammation in the lungs; inhaling something irritating or hazardous, silent aspiration, GERD, etc. Some of us, with bronchiectasis and a diagnosis of MAC or MAI (mycobacterium avium intercellular), don’t have any other symptoms besides the cough. Some people take antibiotics for a long time to get rid of the NTM infections. Most of us inhale some percentage of hypertonic saline since studies have shown that it helps control the NTM infection. To my knowledge, there is no cure for bronchiectasis and it is progressive. You can slow the progression by daily lung clearance, exercise, good diet, but having it makes you susceptible to lung infections. So basically — NTMs, bronchiectasis, GERD, cavities, nodules, are all somewhat connected. There doesn’t seem to be a consensus as to which comes first or which causes what. Although I can explain it, (I think accurately), that doesn’t really mean I actually understand it. Lol. I hope this helps.
Gina

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Replies to "@goddard MAC (mycobacterium avium complex) is an NTM (non-tuberculosis mycobacterium). There are over 170 different types..."

@ginak...So beautifull said. Thank you for stating so clearly. Kate

@ginak Gina that is a wonderful synopsis of a complicated issue. Thanks

Gina I read your message from Jan 23 again your right in point about all that you wrote I’m currently in Arikayce and it’s been 2 months now I’m ok just very congested in my chest with cough seems it’s hard to get my phone up I try everyday it’s so annoying I hear wheezing and feel it too. I do huff coughing doesn’t seem to help much. I do get the night sweats and all you mentioned I do some walking for exercise mainly on my treadmill in the winter. My biggest worry is will my Arikayce medication work and get rid of this and if one day a catch a cold or get sick my lungs are already congested will I be able to handle a cold . This is all so new to me and I’m scared not going to lie thanks for reading this and taking the time