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@terri672

36 year journey to diagnosis for Ankylosing Spondylitis. Classic start at age 26 with pain and catches in my sacroiliac joint. Diagnosed with fibromyalgia in my 30s... Saw many specialists with many x-rays, MRIs, etc.. My symptoms were classic AS. I kept telling them I had every symptom os AS, but no one listened. No one knows your body like you do. My ANA was weak positive. I have osteoarthritis, my spine was fusing and ribs locking up.... In retrospect, I think I didn't complain loudly enough. Just keep telling them.... maybe someone will finally listen!

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Replies to "36 year journey to diagnosis for Ankylosing Spondylitis. Classic start at age 26 with pain and..."

@terri672 That’s a long journey. I’m so glad you were persistent! Doctors really need some extra special education on these diseases. Many rheumatologists, luckily, are getting this education, but no one seems to know they are the new specialists. Maybe your focus now could be on helping other people through the maze to diagnosis!