I was diagnosed with PMR May 2016. I didn't want to use corticosteroids, so after I did some research, I wanted to take Actemra. It's hard to find a physician that'll prescribe Actemra, but the sponsor in both the Phase I & Phase II trials is Dr. Robert Spiera, an HSS rheumatologist in NYC. I went to him & he (after some discussion) agreed to start me on Actemra, using injectables for a duration of (3) months. It was the same dose used in both the Phase I & Phase II trials, though in these trials, Actemra IV infusions were used. I have nothing but good things to say about Actemra, though you have to find a physician that knows the pitfalls of taking the drug. Pre-treatment lab tests have to be done to exclude your having an infection before you start taking Actemra and scheduled lab work during the period you're on Actemra is required. You have to find a physician that knows what he's doing & has experience with the drug. I had no issues with Actemra & the PMR was gone before the (3) month period had elapsed. Actemra, though, is not a benign drug. Actemra is expensive & insurance doesn't cover much of the cost. I paid cash for the drug. Prior authorization covers some of the cost, but not much - only about $400.00. Virginia Labbadia

@johnbishop
I have been on prednisone for the past 5/6 yrs because of PMR. My doctor has suggested I try Actemera and wean myself off prednisone. I have had one infusion of Actemera so far without any side effects and am due for my second one in a week. I’m down to 10 mg of prednisone and going slowly with my reduction of it. So far all is good.