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Mac question: Arikayce Inhaler Antibiotic

MAC & Bronchiectasis | Last Active: Mar 5, 2022 | Replies (73)

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@bnthorson

I am so sorry you are going through this! I took Amikaycin for 2 weeks but had to stop Because of side effects. I then started Arikayce two months later. I didn’t lose my voice but was very hoarse. Unfortunately had to stop it too. One strain of MAC I have is resistant to azithromycin. Yesterday I started Clofazimine. . So far so no side effects! Still on the Big 3 too.
Wishing you relief from the lost voice!

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Replies to "I am so sorry you are going through this! I took Amikaycin for 2 weeks but..."

hi. I've been taking Arikayce since Oct 2020, with the predicted hoarse or absent voice and worsening tinnitus. It's the only thing that helps me cough out the tiny bit of sputum that I do. I'm used to it now, but the Arikayce rep said it just took a little time to get the voice back ... well, the voice is still not back and I'm just presuming that it won't come back until I stop taking the Arikayce. btw, I tried all sorts of lozenges, drinking hot water after, gargling with hot water or salt water ... nothing worked so I just deal with it. .... However, I'm very curious about the clofazimine -- my ID doc wants to start that and, from what I've read about it, I really am wary of it ... especially its 70-day half life! Please tell me how it is affecting you - like, did your skin turn orange-pink-brown??