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Mac question: Arikayce Inhaler Antibiotic

MAC & Bronchiectasis | Last Active: Mar 5, 2022 | Replies (73)

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@sounder27

jr2366. Hi Jennifer. I too had the hoarseness when I first began the Aricayce. At the time I was working with the public designing kitchens during which I had to talk quite a bit to communicate with my clients. My pulmonologist and I decided to try the med application every other day and that worked well. Also I do not swallow during the inhalation process but rather use a tissue to expel saliva. I just concentrate on the inhalation. I do drink a large glass of water after the whole procedure is finished and I think that helps to clear the throat of anything that may have coated it during inhalation. This may all just be my way of coping but it seems to work for me. You may have to come up with your own methods and check with your pulmonologist.
On another note, when I first found out that I had Mac and bronchiectasis, I was terrified and depressed for quite awhile. I drew up a will and began cleaning out my basement and throwing out belongings that I no longer needed in anticipation of the worst. That was 5 years ago and now I’ve learned to live gracefully with this disease and finding this website and all these terrific people who also cope with their Mac journey has been so so helpful and at times comforting. Time will reveal that you are strong and resourceful too. I wish you only the best in the coming year. Candy

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Replies to "jr2366. Hi Jennifer. I too had the hoarseness when I first began the Aricayce. At the..."

Sorry for getting back so late but bring in Arikayce I feel the same I also have bronchiectasis I have been upset I’ve been in Arikayce now since this past dec I just feel like my life now is scary if you don’t mind me asking only cause I’m so new to all this I seem to try thinking positive through this all but with your bronchiectasis do you feel wheezing and do you have a hard time getting phlegm up before bed it keeps me up a lot my dr just gave me musinex and omeprazole for reflux last week the coughing seems little less how are you after 5 years what are you in now anything for the bronchiectasis and we’re you ever on anything? Just wondering I’m very nervous with all this I can’t help it thanks for any info I appreciate a lot