Vascular EDS does cause those symptoms and other things can too. If you already know your mom and son have vascular EDS it’s no wonder they’re testing you for it. But if you suspect they have it and find out actually that none of you do, don’t give up there are other causes of such symptoms as I said, and they can be treated, some more effectively than EDS. The most recent thing doctors found which can cause a myriad of diverse symptoms that some people with EDS like symptoms have is Hereditary alpha Tryptasemia and or the related Syndrome (affectionately called HaTS)

You know, there is hope no matter what your diagnosis. I had a friend who swore she and her daughter had vascular EDS and pointed me towards my own diagnosis. Turned out they have another even more rare connective tissue disorder, but treatments were easier to find, and their illness was taken seriously immediately upon diagnosis. The good news if you do have vascular EDS is Mayo has years under their belt of treating other people with it so you are in the right place if so. Fingers crossed you find your answers and find a better baseline soon. Ii’m glad to see others have pointed you to some good people and places for support.