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← Return to Ehlers Danlos Syndrome (EDS) & HSD, calling all types!
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Ehlers Danlos Syndrome (EDS) & HSD, calling all types!
Bones, Joints & Muscles | Last Active: Feb 8 8:59pm | Replies (65)Comment receiving replies
Hello @colleenyoung, thank you for the connections.
It's interesting. Yesterday and the day before, even though walking with a cane, I felt pretty good. I had upped my CBD intake and I feel that it helps.
However, today I woke up, was in the bathroom about 5 times already, and my whole body feels inflamed from the inside out. I can't predict when I will feel well and when I won't.
I did go back to work yesterday for the first time in over 3 months (limited to 4 hour shifts) and I was happy to be there. However, on days that I feel like this, I cant imagine working. I don't know what to do about it and I heard from someone in the RAM (Rare advocacy movement) that because someone was faking having EDS on the show Intervention, Disability claims are often thrown away and I truly do feel like this is a disability!
I just need some direction... I feel lost.
Replies to "Hello @colleenyoung, thank you for the connections. It's interesting. Yesterday and the day before, even though..."
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It is not uncommon for people with connective tissue disorders (and/or several other disorders) to have days they feel better and often to overdo on those days. Then wake up feeling like a train ran them over the next day and it can take days to weeks to recover from overdoing it. Learning the balance between pushing myself to do the most i can without crossing the line into overdoing has been a tough one for me, but it’s doable.