First let me say that I am so sorry to hear that you have this syndrome, particularly the type you have. I have Classical-like EDS. I do understand your pain. I too have a myriad of painful situations. Try really hard not to settle into depression, it's hard to climb out. Be thankful for seeing, breathing, smiling. I try to think of the millions of homeless, hungry children - and that puts things into perspective for me - my problems don't seem so bad. Please let us know how you are doing.