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@kathyhg

I’m joining this forum because I have similar questions. My last bone density test has indicated moderate osteoporosis in my lumbar spine. My doctor wants me to start on a medication immediately but has agreed to refer me to an osteoporosis clinic.

My concern is whether one can start a medication and then stop/change after consulting with experts. It doesn’t seem like a smart way to proceed. I was on fosomax for 5 years in my 50’s. My doctor is really pushing for me to start Prolia.

Can anyone share their experience with Prolia or other drugs and/or risks of starting and stopping these drugs?

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Replies to "I’m joining this forum because I have similar questions. My last bone density test has indicated..."

@kathyhg I am getting my fifth Prolia injection next week. I am 66. I was diagnosed with osteoporosis in my late 50's and choose to not treat it until the risks of continuing done this path outweighed the benefits of medication.
You cannot just stop taking Prolia. A decision to stop requires a backup drug plan in place. For example Reclast (in my case because I have gastrointestinal problems and oral bisphosphonates are not advised). Stopping Prolia abruptly puts patients at risk for vertebral fractures.
My bone density had improved in both the spine and the hip.
Prior to starting medication I was lucky to not experience any fractures and no fractures to date.
The side effect I noticed from the first few injections was a lingering fatigue.
I have noticed my IBS-C is worse since being on Prolia, however, the endocrinologist thinks it is not the Prolia. Hard to know as I went from never taking any medications to now being on three drugs all around the same time.
I do like the ease of this method of treatment. (One injection every six months).

I took Fosamax on and off for over five years. Due to side-effects from Fosamax and research reports that were very concerning about the other osteoporosis drugs that required me to stay on them long-term, I chose to stay off all drugs. It has been eight years now, and I'm doing great! I eat yogurt, take vitamin D3, a probiotic, and exercise every day. If you do decide to take osteoporosis meds, be sure and research them as some types you'll need to commit to staying on long-term. We are all not the same and what is the best course of treatment or non-treatment is maybe not the best for someone else with osteoporosis. My best wishes to you.