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@catharbert

Hi there heyhey. I am 76 and found out that I have severe osteoporosis about this time last year. I was referred to a good endocrinologist and he advised me to take Evenity - monthly injections. I didn't ask many questions and didn't know much about it. After about 4 months I was fatigued all the time and felt weak so I decided to stop the Evenity. I was told I had to get on another medicine right away because I would start losing bone density as soon as the treatment stopped. The doctor prescribed a once a day self injection Tymlos. After a couple of weeks I stopped it because of side effects - mostly severe fatigue and feeling "bad". The doctor then prescribed oral Fosamax which I tolerated well but I was concerned that I might be sacrificing a good treatment for a mediocre one. I asked him if I could go back to Evenity because I knew what it was like and it was much easier than the Tymlos. He wouldn't restart it. I decided I wanted a second opinion and I chose a Rheumatologist who had a reputation for treating osteoporosis. She consulted with the Evenity sales rep and he said there was no reason not to restart the Evenity. At the same time I got a new DEXA scan and I was very encouraged by the results. The scan showed a significant improvement in my spinal bone density. There was a small degree of bone loss in the hips. My big concern is the spine because I have other health issues. The gist of this story is that I am very sensitive to medications of all sorts. I have side effects that are the rarest. With Evenity the side effects are really very minimal. I gained some weight and I think the initial side effects I had might have been due to the fact that I was 20 lbs underweight when I started it the first time. I have gained the weight that I lost back plus a little more. I am only 5 feet tall and now 116. My average weight for many years was 109 lbs. I think that my diet had not been as good as I thought but when I started Evenity I was trying to get the calcium I needed every day from food instead of calcium supplements. It worked but I put on weight. I need to exercise more too but I have a painful nerve condition, neuropathy that makes that hard. My message to you is try the Evenity. It was very effective for me and I am not having any side effects now. I understand your fears and concerns as I had them too but you need to move forward on this. I think it is better to try the Evenity and see for yourself if you have a problem with it. I know it is a new drug but that does not mean that it is necessarily going to cause you problems. You will definitely have problems if you don't take something to stop the osteoporosis. There are alternatives that are "natural" and you can manage your diet and exercise to try to rebuild bones that way but it will be a much slower process. Remember that everyone is different and that more people will complain than will praise anything. Good luck to you.

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Replies to "Hi there heyhey. I am 76 and found out that I have severe osteoporosis about this..."

Your sharing is very helpful for me since my doctor suggested me to be on Evenity too. Evenity can only be administered for one year. Are you near completion? Does your doctor suggest what treatment to follow after 12 months?