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Need help with gut issues - feeling discouraged.

MAC & Bronchiectasis | Last Active: Apr 9 10:27am | Replies (70)

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@sueinmn

Hmm, it sounds like you're doing everything I would suggest. I will say, once I was off the Big-3, it was months before I could eat without pain and/or nausea. I managed to get through it all be eating tiny amounts of food every 2 hours, whether I wanted to or not. I often made a pitcher of protein smoothie, filled with whatever fresh fruit/veg I could tolerate as well as juice and kept it in the refrigerator, then poured 4oz at a time & drank it. My daughters cannot have dairy, so they substitute another "milk" for the Greek yoghurt I used. My friend uses goat milk kefir (fermented liquid yoghurt) in her smoothies.
It certainly would seem reasonable to have sputum tests done to determent the severity of your MAC, and whether there are any other infections like pseudomonas. Since your gut issues have persisted so long, have you consulted with a gastroenterologist to try to get a complete diagnosis?
Sue

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Replies to "Hmm, it sounds like you're doing everything I would suggest. I will say, once I was..."

Thank you Sue! I did see a gastroenterologist a couple years ago, but it definitely wasn't the right one. They did an upper endoscopy, tried a med, and then offered to take my gallbladder out and sent me on my way. Makes you not too excited to try again, but I definitely need to.
I have an appointment with my pulmo coming up, so will ask for sputum tests. They haven't done any since diagnosis and they never could tell me bacterial load/count, and said that is not done. I will push to see if they can send to a different lab. If I didn't have all of you saying some of these things are necessary & possible, I wouldn't know what to ask for so thanks to everyone here!!! I'm sure I am known as the "problem patient", but I'd rather be that and get the right care!
Thank you!
sherri