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Does anyone have experience with Palliative Care?
Chronic Pain | Last Active: 3 days ago | Replies (106)Comment receiving replies
@merpreb Think they know but "forget." So, for example, doctor treating me for diabetes is only interested in my A1C, and has in fact told me she will leave my kidney care to my nephrologist. And both of them ignore my IBS, which is the problem giving me the most trouble. Not on the list, but of vast importance, is my husband's dining. I was told to go to my dietician, who would discuss my first three diets, but would not discuss how I might incorporate his dining needs without a doctor's order. I find that shopping (delivery), cooking and meal-planning is getting beyond me, but doctors don't talk to me, or more importantly, don't listen!!
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@trishanna- One time when my son was very little my pediatrician decided not to spend a lot of time with me answering questions and started to walk out the door. I said, "wait a minute, please, I'm not done asking questions. This was long before insurance companies got into the time game. And he came back in. If I were you I would say, " Not one of my doctors will discuss how I am to coordinate all of this. Please help me." Don't take no for an answer. You have the right to proper medical care.
As far as your husband goes, he needs to take control of this too. He needs to get his doctor's attention.
If this confusion happened in another part of your life, for instance, a confusion with different contractors who are fixing your house, how would you both solve it?