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Does anyone have experience with Palliative Care?

Chronic Pain | Last Active: 3 days ago | Replies (106)

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@galevin

You did not say where you are, nor where your present PCP is at. Try a search on WebMD or check with a skilled nursing facility to find out what physicians see patients at the SNF. There are some Nurse practitioners that are grounded in senior care. Geriatric care is challenging, and many times require a specialist, such as a cardiologist, pulmonologist, or neurologist. It is getting harder to find a well-rounded PCP. What kind of emergency surgery did you have. I hope you are doing well. I looked at the links @trishanna sent you. It is not a very helpful site and is designed for caregivers. They also charge an outrageous amount. More interest in profit than. actual patient care. Check with your local Medical Society or a church group. Word of mouth is usually your best source for a referral. Not sure what your health policy is, however many medicare plans have case managers and they can help. You mention 'palliative care'. There are several types, hospice care (for those with terminal illnesses who prefer to die at home. What you have may not be immediately life-threatening, however, difficult to treat. I can help you much more if you can tell me what your challenge is. Pain? Weakness, Paralysis, dementia? Do you have any support, family, friends? Let me know

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Replies to "You did not say where you are, nor where your present PCP is at. Try a..."

@galevin Thanks for your thoughtful reply. I broke my hip and had a hip replacement. I have found this discussion so interesting - I seem to be the only one interested in geratric care amongst my friends, which is why I'm checking with my doctors, who, btw, I admire. No specific major problem, but I find myself, for example, on three different restrictive diets from three different doctors, which is almost unmanageable. Or, my surgeon put me on a "temporary" aspirin regime - not good long term, but nobody told me to stop, so I finally went back to the AP, who told me aspirin are now considered dangerous. Multiply these kind of things and it's burdensome in that I'm my husband's caretaker. Anyway, thanks for letting me vent.