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Does anyone have experience with Palliative Care?

Chronic Pain | Last Active: Jul 29 9:27am | Replies (154)
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@ashby1947

Hi Colleen - Please see my post from yesterday. I spoke with Dr. Robinson, who was kind, professional, and informative; however, she spoke of pretty well defined criteria for whom they would and would not accept into the palliative care program. She also did not consider the referral from my PCP and referenced me as a self-referral. Perhaps that's because my PCP is not a member of the Mayo staff. I'm sure it's a great program, as, in my experience, all Mayo programs are. But apparently it is not for me. Back to the drawing board! Have a good day. Sue

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Replies to "Hi Colleen - Please see my post from yesterday. I spoke with Dr. Robinson, who was..."
Colleen Young, Connect Director | @colleenyoung | Dec 20, 2020

Hi @ashby1947, I'm so glad you were able to connect directly with Dr. Robinson. I'm not sure why your request was considered a self-referral rather than the referral from you PCP. Essentially, it shouldn't make a difference how the referral came in, it is the eligibility criteria that is considered.

Eligibility criteria will differ depending on the state, region and institution. Here is some general guidance:
- How Is Eligibility For Palliative Care Decided? What Procedure Is Followed? https://www.virtualhospice.ca/en_US/Main+Site+Navigation/Home/Support/Support/Asked+and+Answered/Palliative+Care/How+is+eligibility+for+palliative+care+decided_+What+procedure+is+followed_.aspx
- Palliative care: Symptom relief during illness https://www.mayoclinic.org/tests-procedures/palliative-care/in-depth/palliative-care/art-20047525

Sue, might a coordination of care as suggested by other members in this discussion be more akin to what you need?

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