Connect
← Return to Does anyone have experience with Palliative Care?
Discussion
Does anyone have experience with Palliative Care?
Chronic Pain | Last Active: Jul 29 9:27am | Replies (154)Comment receiving replies
Hello everyone who has contributed to this communication. I've enjoyed your comments, support, pain, and hope. I wanted to let you know that my PCP did refer me to Mayo Palliative Care. I spoke to the Dr. director of the program, and she explained that I do not fit their criteria for the program. They work with primarily people with cancer or other end of life issues. She was very thoughtful and kind. So, I'm still exploring optionsd and working with my specialists. I hope this is a good day for you! Sue
Replies to "Hello everyone who has contributed to this communication. I've enjoyed your comments, support, pain, and hope...."
@ashby1947. This whole conversation on Palliative Care has been most helpful. I, too, would not be eligible for such care right now, and yet I'm trying to juggle receiving care from about ten physicians - including surgeons and specialists, physician assistants, etc., sometimes overlapping or contradicting. Would there were a service for us.
Hello, Sue. Well, now you have an answer. No matter what it is, it's always to good to get one! I'm sorry that's not the solution you need right now. I took something quite different from her video, so I'm a bit surprised. May I ask you what you do need? The specific kind of service? I need help maintaining my home, better. I can do some things some times, but nothing can I do just because it needs doing.....make sense? Housekeeper is good, but not as dependable as I'd like. I think I need a 'helper'. Someone to help with things I can't or shouldn't do, like get things up and down stairs! Laundry! I put in a load of laundry and by the time it's ready to remove it, I'm too tired or in too much pain and have to leave it......sometimes overnight or for a couple days until I am better. Not good. I want to hang my personal clothing upstairs in the 2 bathrooms, but have to get wet clothes up there! THen, hang them up! Since my finance died several years ago, I've gone downhill some, gotten behind on the condo reno that he and I were doing together, etc. He had a home in Mandarin....I hope you like that area....I lived there for a few years and loved it. My condo is in SS, San Jose/Baymeadows area. Had we married before he died, I'd be living in his home we shared for a bit. It backs up to a creek, with woods, houses nearby but hidden by the trees. We enjoyed it, but life changes and moves on it's way. Guess I'm working on thinking and plannning, still. Let me know how you are, what you need. Last year, I spoke with a social worker at Mayo.....think I'll contact her again and see what she has to offer. She has some good contacts that may help. Let you know. Blessings, Elizabeth
Connect
Well I still don’t get it. I didn’t know I was that dense but apparently I am.
Could someone explain what criteria have to be met to qualify for Mayo Clinic Palliative care
Thank you,
Jake