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Does anyone have experience with Palliative Care?

Chronic Pain | Last Active: Jul 29 9:27am | Replies (154)
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@ashby1947

Hi - I'm told by Mayo Palliative care to get a referral from my doc. I'm seeing my PCP this week. When I have my initial consultation at PC, I assume at that time we talk about all my docs and how/ir they are involved. I'm so new to this, just taking it one day at a time. Any suggestions you have as to how best to work with PC would be greatly appreciated. Thank you, Sue

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Replies to "Hi - I'm told by Mayo Palliative care to get a referral from my doc. I'm..."
Becky, Volunteer Mentor | @becsbuddy | Dec 13, 2020

@ashby1947 and @ess77 I’m so glad that you’re taking the lead and contacting your PCP for a referral. Warning, some doctors may be reluctant to make the referral, but just emphasize that it is what you need and want.
To get ready for your meeting with Palliative Care, you want to make a list of all your doctors and what they do for you, what prescriptions they write, etc. Also, a list of all your medications and the pharmacies you use. And, then, what PC can help you with. It sounds like you want someone who can take some of the burden off of you. This is important because you need to save some of your energy for just taking care of yourself! Being sick/getting well is such a full time and exhausting job! Luckily, I’ve found that members on Connect really understand and are so helpful. I’m glad you found Connect! Good luck with your appointments and let us know what you learn. Will you do that?

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