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Does anyone have experience with Palliative Care?

Chronic Pain | Last Active: Jul 29 9:27am | Replies (154)

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@1nan

@ashby1947 Hello Sue. I am Nancy, a volunteer mentor here on Connect. You seem to have many of all the same kind of questions that many have about palliative care. I was sorry to hear about that significant list of medical concerns with which you have to deal, and have no doubt they literally wear you out. I also would recommend that you contact the palliative care there at Mayo. While I have not had personal experience, I know of several who have. They spoke about how helpful and personalized the help was, and everything seemed very appropriate. To me the important piece seems to be that nobody has to go through those things alone. Sometimes we don’t like being “high maintenance” for a spouse, no matter how kind and generous they are. It feels good to take control of some of those issues ourselves and find help on our own. You seem to have a good handle on the things you need to do to make this happen and I wish you all the best as you move forward. Please get back and let us know how things work out for you.
Peace, Nancy

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Replies to "@ashby1947 Hello Sue. I am Nancy, a volunteer mentor here on Connect. You seem to have..."

Hello Nancy - I very much appreciated your comments. You put into words some things that I have in my mind. I do not speak of my woes to others, except my husband, and then not more than is necessary (my choice). Perhaps that is because I was a psychologist and am more accustomed to listening than speaking - especially about myself! Not that friends or loved ones would not understand. It's just that my mind is so full of my woes, it is a respite to talk about other things. Mayo Connect is a Godsend to be able to talk about everything that is completely consuming me and be greeted and understood without feeling self absorbed. You are right, of course, about taking back control as much as I can. Like many others, I have exhausted my personal resources and will welcome working with and the support of professionals in this field. I shall keep in touch. Hope this is a good day! Sue