← Return to Does anyone have experience with Palliative Care?

Discussion

Does anyone have experience with Palliative Care?

Chronic Pain | Last Active: Jul 29 9:27am | Replies (154)

Comment receiving replies
@djangomay2

The home hospice program that provides care for my 78-year old wife, who suffers from Alzheimer's disease, recommended right from the outset six years ago that their caregivers provide palliative/supportive care. That seemed sensible to me. So that has been the paradigm for her care ever since. While she was at home, my wife received essentially the same type of services your husband receives -- care coordination, five day a week home care from visiting aides, a chaplain's visit once a month, a doctor's visit also once a month. She is now in a nursing home, receiving minimal medication except for her glaucoma. She is now wheelchair bound and no longer talks. But she is aware of my presence when I visit (all too infrequently because of covid visitation restrictions) and seems to perk up when she sees me. I am hoping to be able to bring her home with me before too long and to go back to the supportive/palliative care we provided before she went into a nursing home. The reason she went there had nothing to do with her. I was hit by a car, suffered broken bones and was hospitalized. Because I was not able to care for her properly as I was recuperating, she entered the nursing home a year ago at the recommendation of a social worker who worked with us. I am now almost completely recovered. And I miss her and do want to spend the waning days of our long marriage separated from each other. I'm hoping to be able to pull it off. Wish us luck! John

Jump to this post


Replies to "The home hospice program that provides care for my 78-year old wife, who suffers from Alzheimer's..."

I will think of you often and send good thoughts your way! I cared for my mother who had altzheimer's for many years. You're blessed she still knows you and you can enjoy each other. Hopefully, she'll get back home to you soon. Blessings.