← Return to Does anyone have experience with Palliative Care?

Discussion

Does anyone have experience with Palliative Care?

Chronic Pain | Last Active: Jul 29 9:27am | Replies (154)
Comment receiving replies
@ashby1947

Hi Colleen - Thank you for your response and information. Yes, I spoke with a person at Mayo Jacksonville about their palliative care program. I learned that i need a referral from my doc in order to get an initial consultation. I see my PCP next week, so I don't think there will be a problem. I also learned that Medicare and my supplemental are accepted for payment. You are so good at following posts and making connections. You are a bonus in the Connect community, and I am grateful for the work you do for all of us! Thanks again. Sue

Jump to this post

Replies to "Hi Colleen - Thank you for your response and information. Yes, I spoke with a person..."
BeBold | @bebold | Apr 26 8:45pm

Decided to delete but can't.

I felt hopeful to get help medicare will pay for but found out palliative care will still only pay for a bath and remove my only supports from my life. Sounds like you have to have a palliative care dr and at home they give you emotional support. Medicare won't pay for two.

Anyway. I was hopeful you had an answer. If I had Medicaid, I could hsve the world for help. I have medicare/medigap (for which I am grateful) but if I'm not willing to get naked for a bath within minutes of anyone they send, even a 20 yo guy, I can't have anything. I winder if someone said it that way to congress they would understand better what elder care means. But respect older people right.

Aging in place doesn't exist unless you have money to pay for everything. Otherwise, it means ask your kids to help.

Very discouraging. I'm 69. Disabled my whole life but recently fell and need help. Nothing available insurance will cover.

VIEW AND REPLY