← Return to Azithromycin, Ethanbutol, & Rifampin Drug Therapy for MAC

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@cmi

I have an interdisciplinary team of doctors…Pulmonary, ID, Rheumatologist, Ophthalmologist, & ENT, working on my behave, all connected through our health care system. The ID doc is covering the medication page and sees me accordingly. I believe because I am so early on in this…he is waiting to see if I can tolerate this plan. I began with just the two Azithromycin 500 & Ethambutol 1200 …will add the rifampin 600 on Sunday…this cocktail is 3 xweek. No alternatives have been offered yet. Comments made before beginning this protocol were “not everyone takes treatment “… I however met “qualifications “ low BMI and fear of weight loss, plus the persistent chest & back pains. I guess I am still too early on in this. My doctors are a good, compassionate, & professional team and we communicate easily via a healthcare portal. ID will follow me with labs for liver function…pulmonary for PFT. My next hurdle will be (if I tolerate meds) how to produce sputum for cultures…I have never had fever, cough, or sputum production. My MAC was confirmed after the bronchoscopy.

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Replies to "I have an interdisciplinary team of doctors...Pulmonary, ID, Rheumatologist, Ophthalmologist, & ENT, working on my behave,..."

I am so happy to hear you have a team dealing with this – it is the best approach, especially if they are in communication with one another.
One way to produce sputum, which I needed to use during treatment, was to nebulize with 10% saline solution under supervision of the pulmonology nurse. Man, it was irritating, but I was able to produce enough for a good culture. Near the end, she would also do a little manual percussion on my back to help me along.
Sue