severe pain in my upper abdomen

Posted by hgarm @hgarm, Jan 21, 2019

It has been a very rough month. I started having severe pain in my upper abdomen a week before Christmas. 2 days before Christmas I had my appendix removed and then 3 weeks later my gallbladder removed (they believed this to be the cause of all of my pain) ever since I have been having severe stomach pains that ate worse then the pains I started with. I have lost almost 22 pounds in a month due to the inability to eat and I feel as though I am wasting away. I am feeling so hopeless and so depressed and I just don't know what to do anymore because doctor's seem to be at a loss while my pain just keeps growing. I have never felt this down before and I don't know what to do about it

Interested in more discussions like this? Go to the Digestive Health Support Group.

Profile picture for suzanne2 @suzanne2

@stevetwarner I would strongly suggest you look into the Mayo Clinic. I also live in Michigan and have been bounced around since 2016 trying to get a diagnosis for a gastrointestinal issue. I went to Mayo in July and got an answer to that and some other problems in other areas. It is worth the effort to go and get some answers.

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@suzanne2 Thank you for that good word of recommendation! Yes, many people who have been seen at other good hospitals have found Mayo Clinic to be the premier center for finding a hard-to-diagnose problem!

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Profile picture for suzanne2 @suzanne2

@stevetwarner I would strongly suggest you look into the Mayo Clinic. I also live in Michigan and have been bounced around since 2016 trying to get a diagnosis for a gastrointestinal issue. I went to Mayo in July and got an answer to that and some other problems in other areas. It is worth the effort to go and get some answers.

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Hi @suzanne2, thanks for the reply. I looked at your profile and see you are from Richland. I'm from Vicksburg so I guess we are "neighbors"! I was a completely healthy guy until a year and a half ago - not A SINGLE serious issue in my medical records other than some higher cholesterol numbers. You are probably familiar with the term Oxalates if you've been dealing with digestive pains but this all started with me during a time where I was eating TONS of high oxalate foods, spinach smoothies, etc. I dropped my cholesterol numbers down significantly during that span which was the positive but then starting having all these abdominal problems. The timing may have been purely coincidental but I still have that back in my mind. I have a great primary doc at Bronson who I've been seeing for over 20 years but we just haven't been able to nail this down so yes, seriously considering going to one of these specialty centers. Thanks!

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Profile picture for stevetwarner @stevetwarner

Looking for some help hopefully. About 1.5 years ago noticed a pain in my left rib cage right on the bone. Could feel palpable pain when pressing on a certain area. Had X-ray and all looked normal. Later I noticed this painful spot would flair up when swallowing certain foods. This has been the most interesting, perplexing symptom! When I eat certain foods, mostly fruits and veggies, some spices (soy sauce, etc) and other highly "concentrated" foods I get an immediate sharp pain in that area that then fades away. Bland foods, rice, butter, meats, etc do not cause this?!? It feels neurological, like a nerve firing exactly upon the swallowing function. This has developed into abdominal/flank pain that flares up around both sides, primarily felt around the rib cages but also sometimes in the center. I went through a battery of additional tests over the next six months, abdominal ultrasound, abdominal CT scan, Gallbladder scans, blood, urine, Lipase test, MRI's of Thoracic and Cervical spine. Pretty much ALL came back normal, including images of spleen, liver, pancreas, kidneys,etc... except for some pretty bad spinal stenosis in my cervical spine. I worry most about Pancreas issues of course, as those are so serious, but I've never had anything close to the kind of pain that patients describe with Pancreatitis - plus both the ultrasound and abdominal CT scan showed normal pancreas - and Lipase test was only 33U/L. I do feel like I get some irritation from eating, although I've limited my diet now to a pretty bland assortment, plus no fruit and more limited veggies, lots of rice, butter, meats and that seems to help. I'll still eat the occasional salad even though it causes the pain to fire on the left rib cage. The eating part is what keeps me thinking its a digestive issue, but then some days I think it's got to be neurological. I am very active, cycling, running and after a hard run recently I noticed I was hurting. So, not even sure if I should be here in the Digestive forums! I've put off following up on much of this with Covid and just live with it, so its been about a year since I've had any tests, but have my annual physical with my Doc in January and we will start the ball rolling again. Anyway just wondering if this makes any sense to anyone who's had a similar experience?!? Thanks!

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@stevetwarner I self referred myself to Mayo! That is how desperate I was!

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Profile picture for stevetwarner @stevetwarner

Looking for some help hopefully. About 1.5 years ago noticed a pain in my left rib cage right on the bone. Could feel palpable pain when pressing on a certain area. Had X-ray and all looked normal. Later I noticed this painful spot would flair up when swallowing certain foods. This has been the most interesting, perplexing symptom! When I eat certain foods, mostly fruits and veggies, some spices (soy sauce, etc) and other highly "concentrated" foods I get an immediate sharp pain in that area that then fades away. Bland foods, rice, butter, meats, etc do not cause this?!? It feels neurological, like a nerve firing exactly upon the swallowing function. This has developed into abdominal/flank pain that flares up around both sides, primarily felt around the rib cages but also sometimes in the center. I went through a battery of additional tests over the next six months, abdominal ultrasound, abdominal CT scan, Gallbladder scans, blood, urine, Lipase test, MRI's of Thoracic and Cervical spine. Pretty much ALL came back normal, including images of spleen, liver, pancreas, kidneys,etc... except for some pretty bad spinal stenosis in my cervical spine. I worry most about Pancreas issues of course, as those are so serious, but I've never had anything close to the kind of pain that patients describe with Pancreatitis - plus both the ultrasound and abdominal CT scan showed normal pancreas - and Lipase test was only 33U/L. I do feel like I get some irritation from eating, although I've limited my diet now to a pretty bland assortment, plus no fruit and more limited veggies, lots of rice, butter, meats and that seems to help. I'll still eat the occasional salad even though it causes the pain to fire on the left rib cage. The eating part is what keeps me thinking its a digestive issue, but then some days I think it's got to be neurological. I am very active, cycling, running and after a hard run recently I noticed I was hurting. So, not even sure if I should be here in the Digestive forums! I've put off following up on much of this with Covid and just live with it, so its been about a year since I've had any tests, but have my annual physical with my Doc in January and we will start the ball rolling again. Anyway just wondering if this makes any sense to anyone who's had a similar experience?!? Thanks!

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Suzanne2, I did the same thing. Called Mayo in tears to get help. Boy, did that operator help me out! Mayo got rid of misdiagnoses! Made new, correct diagnoses and treatment that has and is really helpiing. I'm heading now to gasto in a week for endoscopy, whatever. I have pretty serious esophogeal reflux, very careful what I put in my stomach and been dealing with it for many years. Now, it's a bit worse, having some pain/ache/spasms in my diaphragm, so think it's time to get on top of this. I really suggest you think of getting yourself to Mayo, as they've solved so many issues for me that so many other docs weren't interested in solving or couldn't. Mayo has made my life so much better. I think your Mayo...I'm in Florida....is considered tops in gastro stuff....I know they are in neuro. Wish you the best in your journey. Keep it up, but get to the place that will really find the answers. Don't give up. Blessings.

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Profile picture for stevetwarner @stevetwarner

Hi Teresa (@hopeful33250) - thanks for the reply. Sorry I did forget to mention, I've had both an upper GI and Colonoscopy within the last year and both looked clean. Very minor gastritis noted on the GI but they did not seem concerned. Yes its been frustrating to say the least - especially since everything has tested normal. I don't run a ton but have decided to back off on that to see what happens. It's also winter in Michigan so biking will have to take a break too. I did see a neurologist (spine surgeon) after the Cervical MRI and he was concerned about the stenosis though it was unrelated to any of the symptoms. His concern was about long term effects of balance issues, impact activities, etc. and of course wanted to schedule surgery - you know how that goes - I said no thanks for now! Eventually would like to speak with a neuro that really understands the nerves that innervate the organs/digestive system and the vagus nerve which as I understand it feeds a lot of that. Yes I will keep an eye on this post and give try to give updates. After my physical will probably start researching a visit with Mayo, Cleveland Clinic, etc to see if this can be figured out.

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@stevetwarner - Hi, I think we’re probably related from the description of your background, symptoms, and interests! I share some of the same GI and spinal issues you describe, along with a rare, incurable and progressive lung disease diagnosed 4 years ago when I was 54. Keep us posted on your findings and journey. 🙏

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Profile picture for stevetwarner @stevetwarner

Looking for some help hopefully. About 1.5 years ago noticed a pain in my left rib cage right on the bone. Could feel palpable pain when pressing on a certain area. Had X-ray and all looked normal. Later I noticed this painful spot would flair up when swallowing certain foods. This has been the most interesting, perplexing symptom! When I eat certain foods, mostly fruits and veggies, some spices (soy sauce, etc) and other highly "concentrated" foods I get an immediate sharp pain in that area that then fades away. Bland foods, rice, butter, meats, etc do not cause this?!? It feels neurological, like a nerve firing exactly upon the swallowing function. This has developed into abdominal/flank pain that flares up around both sides, primarily felt around the rib cages but also sometimes in the center. I went through a battery of additional tests over the next six months, abdominal ultrasound, abdominal CT scan, Gallbladder scans, blood, urine, Lipase test, MRI's of Thoracic and Cervical spine. Pretty much ALL came back normal, including images of spleen, liver, pancreas, kidneys,etc... except for some pretty bad spinal stenosis in my cervical spine. I worry most about Pancreas issues of course, as those are so serious, but I've never had anything close to the kind of pain that patients describe with Pancreatitis - plus both the ultrasound and abdominal CT scan showed normal pancreas - and Lipase test was only 33U/L. I do feel like I get some irritation from eating, although I've limited my diet now to a pretty bland assortment, plus no fruit and more limited veggies, lots of rice, butter, meats and that seems to help. I'll still eat the occasional salad even though it causes the pain to fire on the left rib cage. The eating part is what keeps me thinking its a digestive issue, but then some days I think it's got to be neurological. I am very active, cycling, running and after a hard run recently I noticed I was hurting. So, not even sure if I should be here in the Digestive forums! I've put off following up on much of this with Covid and just live with it, so its been about a year since I've had any tests, but have my annual physical with my Doc in January and we will start the ball rolling again. Anyway just wondering if this makes any sense to anyone who's had a similar experience?!? Thanks!

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Good afternoon Steve, I know this may be a long shot given its been 2 years since your original post, but I was curious if you were able to get a diagnosis as I am currently, and for some time now have been, experiencing the same symptoms almost to the t?

No one has been able to provide a diagnosis and like you I have had cts upper lower endos mri’s and my labs are all in the normal ranges.

Thanks in advance

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Profile picture for aprilg95 @aprilg95

Good afternoon Steve, I know this may be a long shot given its been 2 years since your original post, but I was curious if you were able to get a diagnosis as I am currently, and for some time now have been, experiencing the same symptoms almost to the t?

No one has been able to provide a diagnosis and like you I have had cts upper lower endos mri’s and my labs are all in the normal ranges.

Thanks in advance

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I’m not Steve, but I to am having the same issues. If you find out anything. Please share.

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Profile picture for stevetwarner @stevetwarner

Looking for some help hopefully. About 1.5 years ago noticed a pain in my left rib cage right on the bone. Could feel palpable pain when pressing on a certain area. Had X-ray and all looked normal. Later I noticed this painful spot would flair up when swallowing certain foods. This has been the most interesting, perplexing symptom! When I eat certain foods, mostly fruits and veggies, some spices (soy sauce, etc) and other highly "concentrated" foods I get an immediate sharp pain in that area that then fades away. Bland foods, rice, butter, meats, etc do not cause this?!? It feels neurological, like a nerve firing exactly upon the swallowing function. This has developed into abdominal/flank pain that flares up around both sides, primarily felt around the rib cages but also sometimes in the center. I went through a battery of additional tests over the next six months, abdominal ultrasound, abdominal CT scan, Gallbladder scans, blood, urine, Lipase test, MRI's of Thoracic and Cervical spine. Pretty much ALL came back normal, including images of spleen, liver, pancreas, kidneys,etc... except for some pretty bad spinal stenosis in my cervical spine. I worry most about Pancreas issues of course, as those are so serious, but I've never had anything close to the kind of pain that patients describe with Pancreatitis - plus both the ultrasound and abdominal CT scan showed normal pancreas - and Lipase test was only 33U/L. I do feel like I get some irritation from eating, although I've limited my diet now to a pretty bland assortment, plus no fruit and more limited veggies, lots of rice, butter, meats and that seems to help. I'll still eat the occasional salad even though it causes the pain to fire on the left rib cage. The eating part is what keeps me thinking its a digestive issue, but then some days I think it's got to be neurological. I am very active, cycling, running and after a hard run recently I noticed I was hurting. So, not even sure if I should be here in the Digestive forums! I've put off following up on much of this with Covid and just live with it, so its been about a year since I've had any tests, but have my annual physical with my Doc in January and we will start the ball rolling again. Anyway just wondering if this makes any sense to anyone who's had a similar experience?!? Thanks!

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I’m having this same problem only on my right side more. Both ribs hurt terribly. Have had the same test done. Nothing. Please let me know of any answer. Had COVID in 2020

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Profile picture for stevetwarner @stevetwarner

Looking for some help hopefully. About 1.5 years ago noticed a pain in my left rib cage right on the bone. Could feel palpable pain when pressing on a certain area. Had X-ray and all looked normal. Later I noticed this painful spot would flair up when swallowing certain foods. This has been the most interesting, perplexing symptom! When I eat certain foods, mostly fruits and veggies, some spices (soy sauce, etc) and other highly "concentrated" foods I get an immediate sharp pain in that area that then fades away. Bland foods, rice, butter, meats, etc do not cause this?!? It feels neurological, like a nerve firing exactly upon the swallowing function. This has developed into abdominal/flank pain that flares up around both sides, primarily felt around the rib cages but also sometimes in the center. I went through a battery of additional tests over the next six months, abdominal ultrasound, abdominal CT scan, Gallbladder scans, blood, urine, Lipase test, MRI's of Thoracic and Cervical spine. Pretty much ALL came back normal, including images of spleen, liver, pancreas, kidneys,etc... except for some pretty bad spinal stenosis in my cervical spine. I worry most about Pancreas issues of course, as those are so serious, but I've never had anything close to the kind of pain that patients describe with Pancreatitis - plus both the ultrasound and abdominal CT scan showed normal pancreas - and Lipase test was only 33U/L. I do feel like I get some irritation from eating, although I've limited my diet now to a pretty bland assortment, plus no fruit and more limited veggies, lots of rice, butter, meats and that seems to help. I'll still eat the occasional salad even though it causes the pain to fire on the left rib cage. The eating part is what keeps me thinking its a digestive issue, but then some days I think it's got to be neurological. I am very active, cycling, running and after a hard run recently I noticed I was hurting. So, not even sure if I should be here in the Digestive forums! I've put off following up on much of this with Covid and just live with it, so its been about a year since I've had any tests, but have my annual physical with my Doc in January and we will start the ball rolling again. Anyway just wondering if this makes any sense to anyone who's had a similar experience?!? Thanks!

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Hi Steven
In reviewing all your pain, discomfort and type of tests you have taken, have you event been diagnosed with MALS? Median Accurate Ligament Syntrom.
A year and a half ago, I started with pain in my sternum, my flank area, abdomen, and rib cage area. I have had every Gastro test imaginable. 2 endoscopies, esphageal manometry test, CTA abdomen, pancreas liver, gallbladder and many more. The HIDA test showed my Gallbladder only functioning 20%. My gallbladder was taken out. I had a nuclear stress test and nothing showed. Then I found a Facebook Page called MALS PALS and got educated on the possibility of that might be what I had. MALS is a very rare disease effecting 2%of 100,000 people. I then researched a Dr in my area who sent me for a few more tests and confirmed thats what I had. My was actually nMALS relating to the bundle of nerves twisting around the celiac artery and median accurate ligament. This is a very serious compression of the Celiac Artery not to mention the very long recovery.
I'm not saying you have those but you might look into it. I have lost 40 lbs because I couldn't eat anything without having 4 hours of pain. No matter how small a meal or even water effected me.
Good Luck! I hope you find some answers soon.

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Profile picture for stevetwarner @stevetwarner

Looking for some help hopefully. About 1.5 years ago noticed a pain in my left rib cage right on the bone. Could feel palpable pain when pressing on a certain area. Had X-ray and all looked normal. Later I noticed this painful spot would flair up when swallowing certain foods. This has been the most interesting, perplexing symptom! When I eat certain foods, mostly fruits and veggies, some spices (soy sauce, etc) and other highly "concentrated" foods I get an immediate sharp pain in that area that then fades away. Bland foods, rice, butter, meats, etc do not cause this?!? It feels neurological, like a nerve firing exactly upon the swallowing function. This has developed into abdominal/flank pain that flares up around both sides, primarily felt around the rib cages but also sometimes in the center. I went through a battery of additional tests over the next six months, abdominal ultrasound, abdominal CT scan, Gallbladder scans, blood, urine, Lipase test, MRI's of Thoracic and Cervical spine. Pretty much ALL came back normal, including images of spleen, liver, pancreas, kidneys,etc... except for some pretty bad spinal stenosis in my cervical spine. I worry most about Pancreas issues of course, as those are so serious, but I've never had anything close to the kind of pain that patients describe with Pancreatitis - plus both the ultrasound and abdominal CT scan showed normal pancreas - and Lipase test was only 33U/L. I do feel like I get some irritation from eating, although I've limited my diet now to a pretty bland assortment, plus no fruit and more limited veggies, lots of rice, butter, meats and that seems to help. I'll still eat the occasional salad even though it causes the pain to fire on the left rib cage. The eating part is what keeps me thinking its a digestive issue, but then some days I think it's got to be neurological. I am very active, cycling, running and after a hard run recently I noticed I was hurting. So, not even sure if I should be here in the Digestive forums! I've put off following up on much of this with Covid and just live with it, so its been about a year since I've had any tests, but have my annual physical with my Doc in January and we will start the ball rolling again. Anyway just wondering if this makes any sense to anyone who's had a similar experience?!? Thanks!

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thanks I will look into that

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