severe pain in my upper abdomen
It has been a very rough month. I started having severe pain in my upper abdomen a week before Christmas. 2 days before Christmas I had my appendix removed and then 3 weeks later my gallbladder removed (they believed this to be the cause of all of my pain) ever since I have been having severe stomach pains that ate worse then the pains I started with. I have lost almost 22 pounds in a month due to the inability to eat and I feel as though I am wasting away. I am feeling so hopeless and so depressed and I just don't know what to do anymore because doctor's seem to be at a loss while my pain just keeps growing. I have never felt this down before and I don't know what to do about it
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@suzanne2 Thank you for that good word of recommendation! Yes, many people who have been seen at other good hospitals have found Mayo Clinic to be the premier center for finding a hard-to-diagnose problem!
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2 ReactionsHi @suzanne2, thanks for the reply. I looked at your profile and see you are from Richland. I'm from Vicksburg so I guess we are "neighbors"! I was a completely healthy guy until a year and a half ago - not A SINGLE serious issue in my medical records other than some higher cholesterol numbers. You are probably familiar with the term Oxalates if you've been dealing with digestive pains but this all started with me during a time where I was eating TONS of high oxalate foods, spinach smoothies, etc. I dropped my cholesterol numbers down significantly during that span which was the positive but then starting having all these abdominal problems. The timing may have been purely coincidental but I still have that back in my mind. I have a great primary doc at Bronson who I've been seeing for over 20 years but we just haven't been able to nail this down so yes, seriously considering going to one of these specialty centers. Thanks!
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1 Reaction@stevetwarner I self referred myself to Mayo! That is how desperate I was!
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3 ReactionsSuzanne2, I did the same thing. Called Mayo in tears to get help. Boy, did that operator help me out! Mayo got rid of misdiagnoses! Made new, correct diagnoses and treatment that has and is really helpiing. I'm heading now to gasto in a week for endoscopy, whatever. I have pretty serious esophogeal reflux, very careful what I put in my stomach and been dealing with it for many years. Now, it's a bit worse, having some pain/ache/spasms in my diaphragm, so think it's time to get on top of this. I really suggest you think of getting yourself to Mayo, as they've solved so many issues for me that so many other docs weren't interested in solving or couldn't. Mayo has made my life so much better. I think your Mayo...I'm in Florida....is considered tops in gastro stuff....I know they are in neuro. Wish you the best in your journey. Keep it up, but get to the place that will really find the answers. Don't give up. Blessings.
@stevetwarner - Hi, I think we’re probably related from the description of your background, symptoms, and interests! I share some of the same GI and spinal issues you describe, along with a rare, incurable and progressive lung disease diagnosed 4 years ago when I was 54. Keep us posted on your findings and journey. 🙏
Good afternoon Steve, I know this may be a long shot given its been 2 years since your original post, but I was curious if you were able to get a diagnosis as I am currently, and for some time now have been, experiencing the same symptoms almost to the t?
No one has been able to provide a diagnosis and like you I have had cts upper lower endos mri’s and my labs are all in the normal ranges.
Thanks in advance
I’m not Steve, but I to am having the same issues. If you find out anything. Please share.
I’m having this same problem only on my right side more. Both ribs hurt terribly. Have had the same test done. Nothing. Please let me know of any answer. Had COVID in 2020
Hi Steven
In reviewing all your pain, discomfort and type of tests you have taken, have you event been diagnosed with MALS? Median Accurate Ligament Syntrom.
A year and a half ago, I started with pain in my sternum, my flank area, abdomen, and rib cage area. I have had every Gastro test imaginable. 2 endoscopies, esphageal manometry test, CTA abdomen, pancreas liver, gallbladder and many more. The HIDA test showed my Gallbladder only functioning 20%. My gallbladder was taken out. I had a nuclear stress test and nothing showed. Then I found a Facebook Page called MALS PALS and got educated on the possibility of that might be what I had. MALS is a very rare disease effecting 2%of 100,000 people. I then researched a Dr in my area who sent me for a few more tests and confirmed thats what I had. My was actually nMALS relating to the bundle of nerves twisting around the celiac artery and median accurate ligament. This is a very serious compression of the Celiac Artery not to mention the very long recovery.
I'm not saying you have those but you might look into it. I have lost 40 lbs because I couldn't eat anything without having 4 hours of pain. No matter how small a meal or even water effected me.
Good Luck! I hope you find some answers soon.
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1 Reactionthanks I will look into that