So sorry to hear about CK’s busy treatment schedule and hope that things settle soon. I’ve been pretty quiet as well. I had surgery in September (thanks to everyone for their advice prior to the surgery) and it was a more difficult recovery than I expected. Age does take a toll on us...
I had my annual appointment with the Mac (or NTM) specialist in December and both my CT and my sputum bacterial counts were worse than a year ago. My PFT was normal. The specialist said that it’s not uncommon to see this kind of setback for people after surgery as airway clearance suffers and general health takes a step back during recovery. I have been feeling a little sorry for myself after doing pretty well on the nebulizer twice a day, etc. I’m not sure what I can add to my daily regime to get my lungs back to where they were in the summer but will persevere. I just hope my CT and sputum counts improve by the time I see him in June. It compounds my angst that he’s seeing me in 6 months as well.
Anyway, thanks to thumperguy for keeping us connected and always having something positive to contribute!
Kathy,
I also had surgery, but a year ago in September. It was robotic and at Sloan Kettering in NYC. It was very traumatic and I am only now, just beginning to heal. They move a lot around in there if they do a segmentectomy or two, and my body felt terrible:
chest tightness, no energy, fevers, terrible coughing, and breathlessness. I'm 76. Be patient, do what you can, and be really kind to yourself.
Ellen