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I’ve been quiet the past couple of weeks, due to days preoccupied with medical treatments. Between three sessions a day with the nebulizer and SmartVest plus two IV infusions daily through a PICC line, I feel like I haven’t had time for much else. Thankfully, the PICC line and meropenem treatments came to an end Saturday, so life is sort of normal once more. Keeping fingers crossed that the IV sessions killed the bacteria they were supposed to kill. Meanwhile, Merry Christmas, everyone!
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I’m so sorry you had to go through the picc line meropenem treatment. It’s been almost a year since I was sent home from the hospital with the picc line and huge anxiety about what was expected of me to do at home. And yes, you don’t do anything else those two weeks. My husband had to wake me up early so I could start nebulizing etc to get that done before my first infusion of the day. We took a picture to send to my kids of all the equipment laid out. Unbelievable. But it worked. Those deflating clear softballs are examples of creative minds at work.
Well, my two weeks of IV infusions (which followed two weeks of Bactrim) gave me almost six days of improvement after the PICC line was taken out. On the seventh day after the PICC line, my old issues came back with a vengeance. Coughing fits were back, my sputum production increased considerably, and the color of sputum returned to the sickly green color that it was before all of these treatments started. Very depressing. I don't understand why things would bounce back so quickly to my former state after so many antibiotic treatments.
Has anybody else experienced this kind of negative rebound?
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Re cksoville and KathyHG I know what that feeling is being consumed every day by IVs and taking medications and airway clearance —-I had surgery a year ago and had my right upper lobe removed after that I followed up with imepentum and amicacin. Those medications seem to do the trick after two months of therapy—— but in May I found that I had Mac but no abscesses!!—my pulmonologist started me on arikayce for four months which really seem to help me a lot until my creatinine lab showing some kidney involvement slightly and I was taken off arikayce (my pulmonologist wants me to go back on It again now that my creatinine is back to normal but I’m going to a nephrologist today that I saw about a month ago to see if I really should start back on arikayce again or not. I’m not coughing now, I do my airway clearance once a day with with 7% saline. I am short of breath At times but if I could live like this forever I would love that!!! I probably should do another sputum now and see if I still have the Mac because maybe I don’t even need the arikayce again will let you know what occurs. Still afraid they’ll cause I don’t want to ruin my kidneys with the medication for my lungs thanks for letting me vent love you all for your support Judy