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Hello @jwovoss, Welcome to Mayo Clinic Connect. I know it must be difficult trying to find a treatment that helps for over 4 years. Here is some information that you might find helpful
National Organization for Rare Disorders: "What is the best antibiotic for Bartonella? - Bartonella henselae is generally resistant to penicillin, amoxicillin, and nafcillin. Doxycycline and rifampin in combination are the preferred medications for treating neuroretinitis"
- Bartonellosis: https://rarediseases.org/rare-diseases/bartonellosis/#standard-therapies
Clinicians | Bartonella | CDC - "A number of other antibiotics are effective against Bartonella infections, including penicillins, tetracyclines, cephalosporins, and aminoglycosides. Since aminoglycosides are bactericidal, they are typically used as first-line treatment for Bartonella infections other than CSD."
- https://www.cdc.gov/bartonella/clinicians/index.html
Have you thought about getting a second opinion?
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Thanks for the links to NORD, which is one of the websites I have been getting information from. I am not sure who I can get a second opinion from. My current doctor is not well verse in Bartonella, like most doctors in Colorado. According to NORD there are no physicians in this state. My natural path doctor has been the one who found the Bartonella, and even she is having a hard time treating my diagnosis. I'm not sure where to go. I seen many specialist, such as a neurologist and they just diagnose me with fibromyalsia. All these health issues is exhausting mental, physically, and emotionally. I have attempted to reach out to many, but no response or they shrug their shoulders because they don't know how to treat me. I am hoping that someone has a resource or someone I can get in touch with.