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Replies to "I have tried all 3. I then went to non generic Arimidex. It was a small..."
Breast Cancer | Last Active: Mar 17 7:19pm | Replies (132)
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I have tried all 3. I then went to non generic Arimidex. It was a small bit of improvement, but within 4 weeks, I was barely walking again. It has been 4 weeks since I have been off, and I feel normal now. I sleep well, can almost use my hands but still cant bend my fingers, and have had no pain to speak of, other than a bit in my feet when I walk too much, ie shopping. I get my one year, and if I am NED, I will not go back.
Replies to "I have tried all 3. I then went to non generic Arimidex. It was a small..."
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@jeaniebean
I am so sorry you have gone through all of this like all of the rest of us. It is a very personal issue and decision we all have to make. Had I just invasive ductal carcinoma, I probably would think about going off of the AI as well, however, my second lesion is neuroendocrine cancer which is highly aggressive and very rarely presents in the breast first (it usually presents in the intestine or liver). So I require PET scans every 6 months as when it pops up elsewhere, the chemo then would be the same as for oat cell ca of the lung.