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stop the madness

Breast Cancer | Last Active: Mar 17 7:19pm | Replies (132)

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@jeaniebean

I read a great article about estrogen starvation and what it can do to the brain. I was having hand tremors at first as a side effect, which has now travelled to my head. I have onset Parkinsons now. I stopped the AIs completely 4 weeks ago and the pains are much less, and I have more control over the head shakes. Of course the onco says it is not a side effect, even tho I sent her the article, and my dr just refers me to the cancer clinic....

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Replies to "I read a great article about estrogen starvation and what it can do to the brain...."

@jeaniebean
I am so sorry you are experiencing all of those head shakes. It is true, when you ask a doctor about the side effects we experience, the first thing out of their mouths usually is that they don't believe it is related to the AIs. It's like we have to do the research and actually present it to them when you would think it would be the other way around.

I will say that the anastrozole has so many side effects. My oncologist as well told me he has never heard about the bone & muscle pain. I am now getting a small dose of testerone & it certainly ishelping with side effects. Is anyone not taking hormone blockers & just getting blood work every 2 or 3 months to watch their estrogen levels?

Regards
Mary