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stop the madness

Breast Cancer | Last Active: Mar 17 7:19pm | Replies (132)

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@jeaniebean

I now have onset Parkinsons from the lack of estrogen to the brain. I have stopped everything for a couple of months and will see in the new year. I have my 1 year mammo, and had my incision drained again, and feel better now than a long time. My head still shakes like crazy, especially if I exert myself, but I will play a bit until it comes back...... I want to live a proper life....

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Replies to "I now have onset Parkinsons from the lack of estrogen to the brain. I have stopped..."

@jeaniebean I tried all the AI's and they all did horrible things to me. I think it's much more common than doctors acknowledge. An oncologists job is to take care of your cancer. Unfortunately, for many doctors that's where it stops. But quality of life is so important. I was early stage and had a bi lateral mastectomy - so my doctors weren't as concerned about the AI's. I felt like a big, black shadow covered me while on Letrozole and Tamoxifen. The pain was immediate and severe to my joints, especially my hands but the most worrisome was the mood alteration. I felt so depressed and disconnected. Ask for ongoing blood tests for your hormone levels, tumor markers, etc. You'll know if things are going 'sideways' that way and it might give you some calm knowing where you stand. I'm at five years now without cancer recurrance and holding, ha ha. Other problems are creeping up and it's patch, patch, patch but at least these past five years have been more tolerable without pain and mood problems. Hugs.

I have been off them for 3 years now after only taking for 6 months, and I still get head tremors. My doctor just shrugs them off. The damage from these drugs is so debilitating for some. I just dont see there worth, if I cant walk, use my hands, tremors, bend fingers, bend toes. etc etc etc. The healthy diet with no meat or dairy is all that has helped me. I walk every day now, but it still hurts. My head is shaking as I type....... My neck gets very sore. Chair yoga has helped me quite a bit.