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My advice is never give up. Regroup and take your battle to your affliction. Find moments of inspiration to go at it a different way. I have received very good care at Mayo Rochester and Jacksonville. I've also seen specialists at Cleveland, and IU Health Indy. Take a nugget of positive movement from each visit. My perspective is you are in the end your best and sometimes only champion of your own health. You have the most vested interest to keep up the fight. Don't take no for an answer. Be the first to prove everyone wrong and find your way forward. I was given a slim chance to survive esophagus cancer to even live 1-5 years. I am in year 12. Never look back, be thankful, build on what makes you strong.
Replies to "My advice is never give up. Regroup and take your battle to your affliction. Find moments..."
Thank you, @esophaguscancer for your inspiration. You’re right - we are our best advocates. Only we know the details of what’s ailing us. I’m really encouraged to hear your survival story and how you have outlived your illness timeline. I bet you have an interesting story to tell about how you’ve overcome the odds.
Of course, there are also times when we need others to advocate on our behalf. Since my earlier posts in this thread, I have been diagnosed with a severe case of ME/CFS Myalgic Encephalitis/Chronic Fatigue Syndrome and I’m struggling to find the energy to keep searching for help. Yet, I’m doing my best read through research studies as I’m able. Finding doctors who believe ME/CFS is worthy of their time is of course an ongoing challenge.
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Hi @esophaguscancer, great motto "never give up." I invite you to also take part in the cancer groups here on Mayo Clinic Connect, for example:
- Cancer: Managing Symptoms https://connect.mayoclinic.org/group/cancer-managing-symptoms/
- Head & Neck Cancer https://connect.mayoclinic.org/group/head-neck-cancer/ (Esophageal cancer discussions are currently found here, although we will be opening an Esophageal Cancer group soon.)
There is also a monthly Zoom meeting for Esophageal Cancer support: https://connect.mayoclinic.org/event/esophageal-cancer-support-monthly-meeting/?date=2021-02-19
Welcome.