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faithgirl30 (@faithgirl30)

When Mayo Won’t Help. What Next?

Visiting Mayo Clinic | Last Active: Feb 19 7:52pm | Replies (42)

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@colleenyoung

Hi @faithgirl30, I moved your message to the Visiting Mayo Clinic group (https://connect.mayoclinic.org/group/traveling-to-mayo-clinic/) as per your request.

Your visit to Mayo Clinic in Arizona sounds disappointing to say the least. I'm really sorry to hear that that was your experience. Let's see if we can't problem solve this with some ideas from Connect members and seeking the proper channels within Mayo. I'm tagging a variety of fellow Connect members to hear their thoughts about coordinating care at Mayo Clinic, like @danab @windwalker @waynen and @jenniferhunter (who has also had extensive spinal surgeries).

First, I encourage you to submit your situation to the Office of Patient Experience by email or phone and tell them everything you've written here. They don't answer medical questions, but will certainly address your disappointment of not getting the full Mayo experience and team approach you were expecting. The team approach is the hallmark of Mayo Clinic. Here's the contact information https://www.mayoclinic.org/about-mayo-clinic/patient-experience

Secondly, could you request that the endocrinologist suggest a referral to another department, like Internal Medicine or Rheumatology? You should be able to make this request through the patient portal. Ask the endocrinologist who you should see next. If you're not to see her or endocrinology to continue the investigation of your issues, who should you see next? That is a reasonable and expected question to ask. Are you still in Scottsdale now?

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Replies to "Hi @faithgirl30, I moved your message to the Visiting Mayo Clinic group (https://connect.mayoclinic.org/group/traveling-to-mayo-clinic/) as per your..."

@colleenyoung Thank you for this very helpful and gracious reply to my post. I’m so grateful to hear that there are still some things I can do to try to facilitate a diagnosis.

In answer to your question, no I flew home last night to Washington state like the doctor told me to. There weren’t any tests or procedures left and no one else to meet with. But I cried most of the way home because I felt so hopeless and disappointed that this was the end of the Mayo help I was being offered.

I will get in in touch with the Office of Patient Experience as you suggested and send a note to the Dr and ask her who she recommends I see next.

If anyone else has recommendations about what I can do I am fully open to ideas. I wanted to post because I know there have to be members out there who know if it’s possible for me to still get help through Mayo.

Thank you!

What do you do when the office of Patient Experience won't help with a serious issue?