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earscan (@earscan)

Cisplatin: What side effects can I expect?

Cancer: Managing Symptoms | Last Active: Dec 23, 2020 | Replies (19)

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Thank you Merry. I had fluorouracil before with the chemo port and had no side effects. The side effects for cisplatin just were alot. I always swore if my cancer came back, I wouldn't go thru this again and it is all so confusing. I sit her feeling normal today, but after everything, when will I ever feel normal again? The only people who really understand are the ones who have gone thru it, Someone the other day said "what's a little chemo and radiation to interrupt your day compared to the alternatiive?" Forgot the surgery and the lymph nodes and more surgery and maybe not being able to get to the para-aortic nodes. My quality of life is really good right now!

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Replies to "Thank you Merry. I had fluorouracil before with the chemo port and had no side effects...."

@earscan– After cancer, which changes a person's perspective on life in general, I think that we have a different normal. There's no going back to before because you have had a life-threatening illness. After my first cancer, I never got over my fear of another one, not knowing that I would have many more. That's not to say that I go around thinking about it all the time. But it's there, like a Jimminy Cricket with a negative 'tude!

I recently, on another site, chatted with a gal who has decided against having a lung transplant. She has end-stage COPD. The main reason, she said, was because she didn't want to be a burden on her family because the recuperation and need for specialized care would be too much.

It sounds as if you have decided to stop your treatments, or am I wrong? Your good quality of life that you feel right now will change as your cancer spreads. If I'm correct in understanding your decision can I ask what your family has said about this? It's an extremely difficult, but brave decision. How long have you felt like this?

Good morning @earscan– I keep thinking what I would have said in response to "what's a little chemo and radiation to interrupt your day compared to the alternative?" Of course, I would have been shocked and maybe not have a quick come-back. But it would, to me anyway, need a comeback, because it is incentive and flippant.

It really is difficult to talk to someone who has never had cancer. I think that this is so because cancer makes you think very deeply about your life and the end of it. If you aren't faced with this then your thinking is on a different plane. So my come-back would have to be something like, "but those are my realities and I know that it's difficult to understand." Of course, in reality, I'd want to say a lot more but we need to educate people so being flippant, as she was, wouldn't help. I have a friend who talks like this. I'm careful with what I share with her.

I'm glad that you're family is behind you. I think that when the time comes mine will be too. Please keep me in the loop with your biopsies. Sailing to see your grandaughter sounds like something you might want to do anyway!