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Questions to ask at your first appointment after diagnosis

MAC & Bronchiectasis | Last Active: Jan 1, 2021 | Replies (23)
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@cmi

Ellen, I have been on the cocktail of 3 for one month....and doing great! I was terrified to start the regimen because my doctors & pharmacist scared me with pessimistic tolerance for the drugs and high dosages; however I felt I “had to toughen up and try”. I truly believe my diet has saved me the ill effects...I have always taken pre/probiotics, lots of fermented foods, no dairy, meats etc. I take Azithromycin & Ethambutol in am one hour before coffee..and Rifampin 2-3 hours after a very light dinner...no problems whatsoever. I’m thrilled. I only pray these meds do the trick...I don’t produce any (absolutely none) sputum...so unless that changes...I assume I will have to wait till my next Bronchoscopy to verify success.

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Replies to "Ellen, I have been on the cocktail of 3 for one month....and doing great! I was..."
irene5 Irene Estes | @irene5 | Dec 30, 2020

@cmi That is great news that you are able to take the Big 3 without incident! That is a wonderful thing! Good for you! irene5

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ellenn | @ellenn | Dec 31, 2020

cmi,
I'm so glad you're doing great on the Big 3!
I couldn't bring up any sputum for the longest time. I was just doing the Aerobica. Then an herbalist suggested I lay flat on my back in bed- no pillow and take deep breaths into my abdomen and bring the inhale up to expand the ribs. Then slowly, thru open mouth, with an sss sound, I let the air come way out till nothing is left.Then again Sometimes I hear a sound and I know it's congestion. I do this 20-40 times then when I cough, the sputum usually comes out.
I don't want another Bronchoscopy, so each time I celebrate my hoarding successfully.
Ellen

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