Echo1970...you have found the right docs...right here on this forum. Healers and Providers come in a variety of packaging...believe it.
My story sounds like You and I have impersonated each other. Here it is...
I am a 64 year old normal height and slender Woman...been active my whole life, walk/run/yoga/gym/...all. I too “out of the blue” noticed I was short of breath going up just a flight of stairs(I use to run up 5 flights as a medical interpreter in the hospital that I worked at 4 years)...my blood pressure would go up (distress from panic and lack of breath), headaches, tingling in hands, fingers, toes, 3 emergency room visits in 2 years...unexplained...work ups for cardiac...headaches...complained to my PCP my voice was weak and changed (labeled “aging/menopausal “)....and oh! Finally labeled “late onset Asthma” and put on inhalers (never ever had breathing issues or Asthma myself or in the family). The big event was this past summer during Covid...my cardiologist sent me to the ER suspect or a PE. Upon CAT scan they saw the lung involvement with a couple of nodules and a “diffused” appearance. This is what is KEY...I insisted insisted loudly to my doctor...the Pulmonologist that was treating me for Late Onset Asthma...”I’m not waiting 3 months to repeat scan...I will go broke with the emergency visits”...he repeated that and scheduled the Bronchoscopy 2 weeks later. I have MAC and it has been 3 months and still no “sensitivity results” back from Texas for the pathology. Meanwhile...my lower left lobe pain/discomfort is always present...my right middle lobe shoots sporadic spears of pain aimed at my heart. Total cardiac workup again...echo, stress tests...ultrasounds, r/o pericarditis...all good...my cardiologist swears that if all her patients had my diet...whole-plant based...no meat, dairy, etc...her office would be empty. My discomfort, pain, fatigue continued...while we were still waiting on pathology to report any drug resistance...I INSISTED on a full rheumatological work up to shed some light on “why such a healthy women would allow MACt to invade?”. My ANA is positive, my CCP way high over the normal, so RA “could explain the chest inflammation and pain?” I was started on the cocktail of 3 drugs by the ID doctor...again because they listen to my pleas...and I am at high risk “for progression” because of my low BMI. Idid contact JNH (Jewish National Health) at the suggestion of my ID doc...they should be first or last options...they wanted to repeat ALL the work my doctors have done over the past 2 years...I will not do that.

So Echo...it has been here...Personas...a God Wink of characters that by virtue of personal experience enveloped in much brain power, grit, consideration, and stewardship, are administering to each other. In this forum you will find the wealth of care and support (free mind you) that will help lead you and girdle you when you pass the threshold of any doctor, specialist, or clinic. Read, listen and research all that you can...from these persons...gifts from God.

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