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Significant osteoporosis: I need a bone plan

Osteoporosis & Bone Health | Last Active: Nov 27 8:02pm | Replies (117)

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@artscaping

Good evening, @heyhey, Welcome to Connect. Osteoporosis is an active discussion on Connect. Many of us face the realities of aging when our bones and bodies just don't support regrowth as efficiently as they did when we were younger. All of us age differently and all of us need to consider a bone plan as we are all living longer and we have to keep up with our grandkids.

I have been particularly interested in osteoporosis and will be completing 18 mos of Tymlos in December. This coming Friday I have my first DEXascan since beginning treatment 18 months ago. I am excited and a bit apprehensive. After Tymlos or Forteo, we, as patients need to decide what our next step will be. We have spent up to 2 years building bone and now we have to maintain it.

In my case, I am severely allergic to the biosophonates, so will have to look at something else. Thereby....the apprehension.

In different discussions you will see many questons being explored and experiences being shared. I am first going to ask for your discussion to be moved to one with appropriate contributors to help you.

May you be content and at peace.
Chris

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Replies to "Good evening, @heyhey, Welcome to Connect. Osteoporosis is an active discussion on Connect. Many of us..."

Thanks. Can I ask 2 questions about Tymlos (a) are you going to post about your scan results and how would I be sure to see your post (b) while on Tymlos, assuming there are no major side effects or events, how often do you get blood tests, bone scans or other . I want to have an idea of how much the "other" will cost. ALSO if you don't mind, if you are going on a longer vacation (3+weeks) how do you manage so that you time your rx refill to begin just before your trip? I am assuming you can only get 30 day refill so not sure what happens if your refill is going to end during your vacation/travel. I realize no one is planning travel now with covid 19 but I usually visit my family for a month every year. How would I get enough Tymlos to cover the trip?.

Follow-up, please, on how your bone scan went after treatment. Also, what was our starting T-score and then follow-up T-score? Thanks.