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No wonder there is so little being done about Neuropathy!

Neuropathy | Last Active: Jul 14, 2021 | Replies (78)

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@jesfactsmon

What we have now for PN from the medical industry and the "alternative" medical industry are pain aids. We all know them. The main ones are gabapentin, Lyrica, duloxetine, followed by opioids, and then of course the cannabinoids, kratom, ketamine, etc. etc. and on and on. Most of these are little more than band-aids at best for most PN sufferers.

What we do not have is a cure. But there is some research ongoing toward one. Of the ones I have heard about, there is Winsantor with their pirenzepine based WST-057, and several companies (WEXpharma, Chromocell, several others) investigating voltage-gated sodium channel blockers. My hope is that one day something will click. That one of these lines of research will result in producing an effective aid in helping to remove the source of the pain itself.

Having hope is not a bad thing. I think life is worse off without hope than with it. So I think it's good to maintain hope for a breakthrough. That does not mean we should not try other things in the meantime. Perhaps neuroplasticity, myofascial release, or some other pursuit will give relief to some people. Great. But while I keep open to all possible short term fixes, I for one am going to maintain my hope for a more significant breakthrough to occur someday, regardless of whether or not it happens in time to help my wife's situation.

Best, Hank

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Replies to "What we have now for PN from the medical industry and the "alternative" medical industry are..."

Good luck Hank on your decision, every major research entity including the worlds presigous universities have agreed that the brain is plastic and by practising Neuroplasticity, new neurons can be created, allowing the brain to repair itself. That the brain is plastic is the biggest revelation in over 200 years. I have spent probably 30 or 40 houra a week for many month researching medical research organisations and universities etc.to convince myself that neuroplasticity does work, BUT, if you dont believe that, with all your heart, it won't work. It is working for me , but I reckon it may take 2 years for me to get back to normal. I had an extremely itchy back problem. I visited my doctor who precribed ointment, and without give me relief , he referred me to a specialist, who prescribed a much stronger ointment, that had be applide every day for 2 weeks. As I could not apply myself, I had to pay for a nurse to come every day to do it, but it did not get rid of my angry itch. A couple of weeks on a hot sweaty night, it was driving mad atabout 2.30 am. I decided to use the method , outlined chapter 7, first Book. It meant ignoring the itch, and most definitely not scratching it. Of I never slept a wink, for the rest of the night. The next night itch continued but not as bad. The following night, the itch was there, but very minor. NOW LISTEN TO THIS: NThe next day my itch has totally has vanished. I get the occasinal urgre to scratch occasionally, but simply ignore it. It does take a bit of will power, but when you are getting results, even small improvements, the challenge is worth the effort and motivating as a result. My best wishes to you and your journey. The decision is yours Hank, as it is with me..

@jesfactsmon Hank, take a look at research possibilities in regenerative medicine.

Being in a swim pool helps me. A warmer than normal one such as we have for rheumatology patients. Haven't been in it for about a year and a half bc I got kicked so hard it firmed a blood clot. I always get hurt in the piol. Can't feel wetness in any of my skin! Love it, wish I could be there. Sunny