@caretakermom Anna, I have read this entire discussion, and first off, want to commend you for knowing details so thoroughly about your husband's situation. Being a caregiver and partner to a dialysis patient can be frustrating and stressful for you both! What kind of dialysis is your husband doing, and how long has he been on it? If you haven't been there, a great website is UNOS.org for real facts and info on transplant.

Regarding your husband working full time and on dialysis. My husband was, too, before his transplant. He was on peritoneal dialysis for 5.5 years. He used disability as he recovered from the transplant, for the 3 month recovery. If your husband is running out of PTO days, perhaps his employer has a program where fellow employees can donate hours of their time-off bank to help him out? My last employer did that, it was anonymous, and a real supportive way to show someone you care. He could also look into FMLA if that might fit his situation.

Every transplant center has their own requirements and preferences. Don't be afraid to double list. UCLA and Mayo AZ. Yes, you have to go through two different evaluations, but they might be able to use the same test results for both places. My husband was listed at Loma Linda University, using Kaiser Permanente insurance, then decided decided to double-list at Scripps Institute in La Jolla because their wait list was shorter. Scripps was his transplant center.

You have gotten some stellar advice from @feelingthankful and it will serve you and your husband well, to carefully consider all the possibilities. Make a list if you need to, pros and cons of places, procedures, etc. based on what you are told and educated on. Check with your insurance about coverage [a very important factor!] Have your husband speak with his HR dept about his situation, so they are aware.

I would be honored to answer whatever I can, for you!
Ginger