Connect
← Return to CT Scan Shows End Stage Bronchiectasis In One Lobe
Discussion
CT Scan Shows End Stage Bronchiectasis In One Lobe
MAC & Bronchiectasis | Last Active: Feb 13, 2022 | Replies (43)Comment receiving replies
Hi Coco, So sorry about the abrupt announcement you received and then the long wait for your appointment - it is so nerve-wracking. I don't know where you live in Idaho, but I live in Boise. I only know a couple people in this area with bronchiectasis/NTM and I doubt our pulmonologists treat much of this just because there isn't a huge population base so not many cases. That being said, I have had a decent experience w/my pulmonologist here, though I was one of the youngest patients he treated with Bronchiectasis (56). I would be happy to compare notes with you if you are in the area. Though it's so hard, try not to draw any conclusions until you meet with the pulmo and you can come away with so much more information about your particular situation.
Also, your level of activity is super! Keeping your lungs working hard is so helpful for this condition, so you are already doing things to keep the disease at bay!
Replies to "Hi Coco, So sorry about the abrupt announcement you received and then the long wait for..."
Connect
Hi, Shooei. I am also in Boise. I feel like I am worsening, rapidly. The day after I posted this I was on the treadmill and not really walking/jogging at a speedy rate for myself and when I got off was terribly winded and had severe pressure on both sides of my chest and when I woke up the next day had a rapid heart rate, high blood pressure and shooting pain in my left arm and neck. My husband took me to the ER and they did several EKG's and rounds of bloodwork to make sure I didn't have a clot somewhere. Nothing was found and they sent me home. The only thing that I had changed recently was that I was at the two week mark on a new inhaler (Flovent). The pulmonologists office told me to quit taking it and I have not had a dose for two weeks now but still feel worse than I did before Oct 28th. I took my first sample to the lab last week and haven't heard back from the pulmonologists office but the lab report looks like I have many gram positive cocci and many gram negative rods but also looks to me like it might not have been the greatest sample. At this point, I feel like I may have something else going on but I'm not sure what. I was feeling more myself at the beginning of the week and went for walks two days in a row thinking fresh air and not having to try to keep pace with the treadmill belt might be a better option for exercise and now I don't feel so great again. I would love any input you have on how you have found the pulmonologists in the area. December 9th still seems like such a long way off although I'm not sure what I am even expecting out of the appointment. I know there is no magic wand they can wave to make me feel like my old self but this sure seems to be progressing fast.