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CT Scan Shows End Stage Bronchiectasis In One Lobe
MAC & Bronchiectasis | Last Active: Feb 13, 2022 | Replies (43)Comment receiving replies
I just turned 50 and have lead an active and healthy life other than being hospitalized twice when I was very young with pneumonia. In March I started having trouble with chest heaviness and just a general "not right" feeling in my chest. I recently had a CT scan and the findings were end-stage bronchiectasis in my right middle lobe. I will admit that I lead a busy life and have maybe not been so in tune in the last 5 years with subtle symptoms. My follow-up appointment with my pulmonologist is over a month away and I am terrified. Has anyone else been diagnosed with end-stage bronchiectasis?
Replies to "I just turned 50 and have lead an active and healthy life other than being hospitalized..."
@coco1970 End stage means your lungs have been compromised sufficiently so that little can be done to repair the damage except to have a lung transplant. With that said, my husband was diagnosed with end stage sarcoidosis, and there was discussion about a lung transplant. We liked this pulmonologist very much but went to another lung specialist in another state. I agree with Beth - it never hurts to get a second opinion. It can only add information to help you make a more informed decision about your health. irene5
Coco, I have never heard of end stage bronchiectasis either. You may want to ask your dr to clarify just what exactly that means.
I agree with Beth & Irene. My Scans are read by doctors in Charlotte NC & the team at NJH in Denver CO. Each & every radiologist, ID doctor and pulmonologists sees those scans with their eyes, training & experience. No two see the exact same findings. Mine range from “moderately” “mildly” “improvement” “same” “progression”. Not the most comforting answers when not exact agreement is confirmed; however for me it is the reminder….science…medicine is not perfect…humans are only humans…and we are a complex combination of more than the mundane. Get as many opinions as you can, but you are the best and only judge on how well or not well you feel. Keep taking care of yourself and discern these opinions as they come in. Keep talking to this group.
Regina
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I’m certainly no expert and you don’t say where you are being seen, but I would certainly get a second opinion. Also, the pulmonologist may interpret your CT scan differently than the radiologist who did the CT scan.