← Return to HPV P16 positive cancer

frankbc (@frankbc)

HPV P16 positive cancer

Head & Neck Cancer | Last Active: Mar 26, 2023 | Replies (107)

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Hi, I’m not sure if you can see what I wrote to Cindy. If not, I will cut and paste it. It’s my husbands story. So glad you are still here, too. It gives us hope. My husbands initial treatment is going well with 3 more treatments to go ending just before the end of the year. The diagnosis, head and neck, primary unknown was given the end of July.

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Replies to "Hi, I’m not sure if you can see what I wrote to Cindy. If not, I..."

Glad to hear your husbands tratment is going well. Initially the MDs did not know the primary source of my cancer, but that all changed when they found the primary source behind my right tonsil. As I mentioned in my last reply, I had been scoped many times but the ENT’s never looked behind my tonsils. They found my primary source when they put me under to have the feeding tube inserted. Luckily, I had a great surgeon that took the time to further explore in my mouth for the primary source. As you may know, by knowing where the primary source was they could now begin a course of targeted radiation for the specific area. As far as losing my taste after treatment, my MDs said it could take up to a year. For me it took close to two years to get my taste back to about 99% but everybody is different. Taste does return, but it has a short memory when it starts to return, the first bite is always the most flavor then it starts to diminish until you take a bite of something else. Any other questions feel free to ask. Always willing to share my experience if it can help others. Keep the faith and stay strong!