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Loss of awareness of where your body is in space

Neuropathy | Last Active: Nov 9, 2020 | Replies (23)

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@lweave2

I learned from this group that proprioception is the loss of your surroundings, but I also feel like I have lost the surroundings of my body.
What I mean is when I'm outside walking and if I go up a little hill, I feel disconnected to my heart rate and my breathing. I know I'm breathing and I have a heart rate but I don't feel it. I feel diconnected to my surroundings and my own body. I do have numbness in my feet & legs. Does anybody know what I'm talking about? I have a physical therapy apt tomorrow, and I will ask her about it. This is very over whelming to me. 👱‍♀️ Thank you!

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Replies to "I learned from this group that proprioception is the loss of your surroundings, but I also..."

Hello. My neurologist told me the other day that when she used the tuning fork on my legs, that I didn't feel the vibrations toward and on my feet which means I have proprioception. She never told me that before!!!! I can't believe it! The Gabapentin is also famous for causing perception issues w/ the space around us and can affect balance, cause lightheadedness and so many more Sxs, some of what you mentioned you go through, which I seem to have all of! It definitely makes the brain numb the pain but I hate the side-effects and I'm only taking 800mg. total in a day. I take them 3 times per day; only two at bedtime. It has a short half-life so should be taken 3 times per day to get max results. I have everything you mentioned except for the disconnect w/ heart rate and breathing.

Hope things improve for you. My heart is heavy reading about your journey. I pray you stay safe and don't fall!!!!! I almost go down several times per day. I use a walker and use walls and counters for support if I don't have my walker like in my small kitchen.

Physical Therapy gave me some balance exercises some time ago. I really can't do them but could try harder. Hope you have success w/ their plan for you.

Warmest wishes, Sunnyflower